Library
- Many Rare Disorders, One Common Voice ~ Oct. 1-2, 2010, Ottawa, Ontario
- N of 1: Working Together to Meet the Challenges of Rare Disorders Conference ~ May 1-2, 2009, Ottawa, Ontario
- Innovative Approaches for Access to Innovative Therapies ~ Mar 2-3, 2009, Edmonton, Alberta
- First Canadian Conference on Rare Disorders and Orphan Products Policy ~ Apr 24-25, 2007, Ottawa, Ontario
Newborn Screening in Canada
The following links provide a status report for all medical conditions that are screened for in Canada based on each province.
Newsletters
Orphan Products Policy Meeting Series
- Forum 3 - Canadians with Rare Disorders - Assuring Access to "State of the Art" Diagnosis & Therapies ~ Mar 20, 2007 Montreal, Quebec
- Forum 2- Improving Canada's Productivity to Meet Unmet Needs for Those with Rare Disorders ~ Feb 6, 2007 Vancouver, British Columbia
- Forum 1 - Options for Funding Drugs for Rare Disorders under Ontario's New Drug Legislation ~ Oct 24, 2006, Toronto, Ontario
Related Articles/Presentations
- Response from Honourable Leona Aglukkaq, Minister of Health Regarding Regulatory Framework for Orphan Drugs
- CORD: Canada's Network for Rare Disorders
- Profile of Rare Diseases
- Slow Move Towards Orphan Drug Policy Leaves Patients in The Dust
- Medicines For The Few - How Can Society Better Understand The Reality of Medicines for Rare Diseases?
- How Canadians Access Drugs for Rare Disorders
- Challenges in Preventing and Managing Rare Conditions in a Publicly Funded Healthcare System
- World Orphan Drug Congress: Europe 2010