Hi, my name is William Aiello I am the Weather Anchor for CTV News Northern Ontario and I want YOU to help me make positive change! On August 4th I will be taking on a journey of stand up paddle boarding for 24 straight hours on Ramsey Lake in Sudbury raising money and awareness for the Canadian Organization of Rare Disorders (CORD). “CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.
This journey will be in honour of my brother in law, Mario La Valle, who passed away in December of 2019. Mario was diagnosed with an extremely rare form of cancer called Epithelioid Angiomyolipoma. I want to do something where I can make a difference while supporting people within our community who are facing difficult times. There was nobody quite like Mario – he was one of those people that made you smile and a made you a better person each and every time you saw him. It didn’t matter what he was going through or any pain he was suffering, he just always looked out for everyone else, he was 33 years old. Please help me by spreading the word or donate if you can and let’s help change lives together.
CORD is a volunteer-based organization, we know how to do a lot with very modest budgets. However, we still need your financial contribution to help us do our work. Even a small gift means a lot.
You will receive a tax-deductible receipt for a donation of $25 or more.
Our registered charity number is 89651 3355 RR0001
Donate Online
Donating online is quick, easy, safe and secure. Click the button above to make a secure online donation.
Donate By Mail
If you would like to send a donation by mail, please send a cheque or credit card information to the address below, including your name, address and contact information. Please make funds payable to:
Canadian Organization for Rare Disorders
151 Bloor Street West, Suite 600
Toronto, Ontario M5S 1S4 Canada
For any questions regarding your donation, contact us at:
info@raredisorders.ca
The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting: August 26, 2024 at 2:00 PM (EDT) via videoconference
CORD Annual General MeetingAugust 26, 2024 at 2:00 PM (EDT) via videoconference Dear CORD Members: The Canadian Organization for Rare Disorders gives notice of it's Annual General Meeting on August 26, 2024 at 2pm - 3pm (Eastern Time). All individual, affiliate and corporate members in good standing are invited participate. An eligible voter must be a representative of a voting member of CORD. Eligible voters may either vote at the upcoming Annual General Meeting videoconference or by proxy. Votes by proxy must be in must be returned to us by August 25, 2024. Ballots received after this date and time, duplicate votes and spoiled ballots will not be counted. To participate in the AGM teleconference, please register by August 25, 2024 Registration: https://bit.ly/4aM8IJL Once we have received your response, we will email you the teleconference details and any other necessary documents that will be required for the meeting. Thank you for your participation and if you have any questions, please let me know. Sincerely, Christine White CORD Secretary PROXY-2024Download
The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting: August 26, 2024 at 2:00 PM (EDT) via videoconference
CORD Annual General MeetingAugust 26, 2024 at 2:00 PM (EDT) via videoconference Dear CORD Members: The Canadian Organization for Rare Disorders gives notice of it's Annual General Meeting on August 26, 2024 at 2pm - 3pm (Eastern Time). All individual, affiliate and corporate members in good standing are invited participate. An eligible voter must be a representative of a voting member of CORD. Eligible voters may either vote at the upcoming Annual General Meeting videoconference or by proxy. Votes by proxy must be in must be returned to us by August 25, 2024. Ballots received after this date and time, duplicate votes and spoiled ballots will not be counted. To participate in the AGM teleconference, please register by August 25, 2024 Registration: https://bit.ly/4aM8IJL Once we have received your response, we will email you the teleconference details and any other necessary documents that will be required for the meeting. Thank you for your participation and if you have any questions, please let me know. Sincerely, Christine White CORD Secretary PROXY-2024Download
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