On March 10th, yellow scarves will take over the House of Commons in support of rare disease patients and families! Members of Parliament from all parties have agreed to wear the bright scarves bearing the logo of Rare Alliance Canada, a multi-stakeholder alliance aimed at improving the lives of patients with rare diseases who face tremendous challenges in terms of getting the right diagnosis, care and treatment (see: http://www.rarealliancecanada.org).
Following Question Period – at 3:15pm – parliamentarians will be joining patients, caregivers and representatives from the Canadian Organization for Rare Disorders (CORD) for a unique and RARE photo opportunity in front of the Parliament Building.
Rare disease patients’ visit to Parliament Hill coincides with International Rare Disease Day that took place on February 29, 2016. The rare disease community is asking the new parliament and government to join them in implementing Canada’s Rare Disease Strategy!
WHAT: RARE photo opportunity with MPs, Senators and rare disease patients wearing bright yellow scarves!
WHEN: THURSDAY, MARCH 10, 20 3:15 pm
WHERE: In front of Centre Block (outside steps)
WHO: Members of Parliaments and Senators
Dr. Durhane Wong-Rieger, President and CEO of the Canadian Organization for Rare Disorders (CORD)
CORD Youth Leadership Award recipient and local hero Jonathan Pitre (and mother Tina Boileau), Ottawa rare disease patient (known as “Butterfly Child” with Epidermolysis bullosa)
50 other members of the rare disease community
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CONTACT: Durhane Wong-Rieger
Canadian Organization for Rare Disorders
(647) 801-5176
durhane@sympatico.ca
The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting: August 26, 2024 at 2:00 PM (EDT) via videoconference
CORD Annual General MeetingAugust 26, 2024 at 2:00 PM (EDT) via videoconference Dear CORD Members: The Canadian Organization for Rare Disorders gives notice of it's Annual General Meeting on August 26, 2024 at 2pm - 3pm (Eastern Time). All individual, affiliate and corporate members in good standing are invited participate. An eligible voter must be a representative of a voting member of CORD. Eligible voters may either vote at the upcoming Annual General Meeting videoconference or by proxy. Votes by proxy must be in must be returned to us by August 25, 2024. Ballots received after this date and time, duplicate votes and spoiled ballots will not be counted. To participate in the AGM teleconference, please register by August 25, 2024 Registration: https://bit.ly/4aM8IJL Once we have received your response, we will email you the teleconference details and any other necessary documents that will be required for the meeting. Thank you for your participation and if you have any questions, please let me know. Sincerely, Christine White CORD Secretary PROXY-2024Download
The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting: August 26, 2024 at 2:00 PM (EDT) via videoconference
CORD Annual General MeetingAugust 26, 2024 at 2:00 PM (EDT) via videoconference Dear CORD Members: The Canadian Organization for Rare Disorders gives notice of it's Annual General Meeting on August 26, 2024 at 2pm - 3pm (Eastern Time). All individual, affiliate and corporate members in good standing are invited participate. An eligible voter must be a representative of a voting member of CORD. Eligible voters may either vote at the upcoming Annual General Meeting videoconference or by proxy. Votes by proxy must be in must be returned to us by August 25, 2024. Ballots received after this date and time, duplicate votes and spoiled ballots will not be counted. To participate in the AGM teleconference, please register by August 25, 2024 Registration: https://bit.ly/4aM8IJL Once we have received your response, we will email you the teleconference details and any other necessary documents that will be required for the meeting. Thank you for your participation and if you have any questions, please let me know. Sincerely, Christine White CORD Secretary PROXY-2024Download
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