Who? Patient Advocates and Patient Partner Leaders from industry and other sectors who are interested in engaging as equal partners in exploration, discovery, and creation of roles as leaders in all phases of the drug lifecycle. Limited to 30 participants.
What? This program will enhance the capabilities of patients, patient advocates, and various stakeholder groups that are involved in drug development and access to partner effectively throughout all phases of the drug lifecycle from drug development to real-world management.
Where? Virtual, 2-hour live sessions (bi-weekly) with interactive small group capabilities that will include structured opportunities comprised of expert presentations from multiple sectors and post-session discussions and written assignments.
Why? Partnering with patients has transformed how drugs are discovered, developed, and made available. We have created a structured program with interactive opportunities, expert presentations, panel discussions, case studies, simulations, and deliberate dialogues. Patient advocates and other stakeholders will engage as equal partners in exploration, discovery, and creation of roles as leaders in a variety of patient partner situations.
When? From October 2, 2020 (includes a year-end holiday break) to February 19, 2021
For more information: Patient Partners Leadership Training Overview
Registration: Spots are limited and will be accepted to ensure a variety of affiliations and perspectives. To register, please submit an application through this link.
FEES
(INCLUDING ALL ACCESS AND MATERIALS)
Regular: $3750 per participant
Government and academic affiliates: $750 per participant Patients and patient groups: $250 per participant
The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting: August 26, 2024 at 2:00 PM (EDT) via videoconference
CORD Annual General MeetingAugust 26, 2024 at 2:00 PM (EDT) via videoconference Dear CORD Members: The Canadian Organization for Rare Disorders gives notice of it's Annual General Meeting on August 26, 2024 at 2pm - 3pm (Eastern Time). All individual, affiliate and corporate members in good standing are invited participate. An eligible voter must be a representative of a voting member of CORD. Eligible voters may either vote at the upcoming Annual General Meeting videoconference or by proxy. Votes by proxy must be in must be returned to us by August 25, 2024. Ballots received after this date and time, duplicate votes and spoiled ballots will not be counted. To participate in the AGM teleconference, please register by August 25, 2024 Registration: https://bit.ly/4aM8IJL Once we have received your response, we will email you the teleconference details and any other necessary documents that will be required for the meeting. Thank you for your participation and if you have any questions, please let me know. Sincerely, Christine White CORD Secretary PROXY-2024Download
The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting: August 26, 2024 at 2:00 PM (EDT) via videoconference
CORD Annual General MeetingAugust 26, 2024 at 2:00 PM (EDT) via videoconference Dear CORD Members: The Canadian Organization for Rare Disorders gives notice of it's Annual General Meeting on August 26, 2024 at 2pm - 3pm (Eastern Time). All individual, affiliate and corporate members in good standing are invited participate. An eligible voter must be a representative of a voting member of CORD. Eligible voters may either vote at the upcoming Annual General Meeting videoconference or by proxy. Votes by proxy must be in must be returned to us by August 25, 2024. Ballots received after this date and time, duplicate votes and spoiled ballots will not be counted. To participate in the AGM teleconference, please register by August 25, 2024 Registration: https://bit.ly/4aM8IJL Once we have received your response, we will email you the teleconference details and any other necessary documents that will be required for the meeting. Thank you for your participation and if you have any questions, please let me know. Sincerely, Christine White CORD Secretary PROXY-2024Download
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