WEBINAR 3 | Debunking Myths of New Regulations on Drug Pricing Controls
Wednesday, September 4, 2019| 12pm – 1pm EDT
Recording
Slide Deck
Objectives:
Why did the Liberal government wait until the dead of summer … when Parliament had left town and most people were on holidays … to put into effect their new regulations on prescription drug pricing? Perhaps they were hoping to avoid close scrutiny of the biased statistics and flawed analyses to justify the draconian regulated price reductions. Perhaps they hoped the patients, who would lose out on medicines NOT coming to Canada, would not notice. Perhaps they hoped the summer media would just “buy” their version of these changes.
Which is why CORD’s next Webinar, Debunking the Myths of the New Regulations on Prescription Drug Pricing Controls is a must-attend opportunity to learn more about the federal pricing regime.
We have less than a year before these new regulations come into effect. The Patented Medicine Prices Review Board (PMPRB) will soon consult on guidelines for how the new rules will operate. The fast-approaching October 21 federal election is another important opportunity to ensure our voices are heard. Join CORD and other experts to unpack the regulatory changes and how they will impact medicines available today and those yet to come.
Moderator:
Bill Dempster, CEO, 3Sixty Public Affairs
Presenters:
Neil Palmer, Senior Strategic Adviser at PDCI Market Access Inc (PDCI)
Durhane Wong-Rieger, President & CEO, CORD
WEBINAR 2 | Health Canada’s regulatory approach to drugs for rare diseases and accelerated review of human drug submissions
Thursday, July 11, 2019 | 12pm – 1pm EDT
Recording
Slide Deck
Objectives:
Rare Disease Strategy: Health Canada approach to drug approval, access to treatments and international collaboration.
Draft Guidance: Accelerated Review of Human Drug Submissions and its applicability to approval of drugs for rare diseases with discussion of changes in process, timelines and benefits for the companies to bring rare disease drugs to Canadians.
Moderator:
Bill Dempster, CEO, 3Sixty Public Affairs
Panelists:
Fiona Frappier, Senior Policy Analyst, Office of Policy and International Collaboration, Health Canada
Megan Bettle, Director, Centre for Regulatory Excellence, Statistics and Trials, Health Canada
WEBINAR 1| Opportunities and Pitfalls in Building a National Drug List – Lessons Learned
Wednesday, June 26, 2019 | 12pm – 1pm EDT
Recording
Slide Deck
The federal Advisory Council on the Implementation of National Pharmacare chaired by Dr. Eric Hoskins recently released its final report recommending a phased implementation of a national universal, single public payer pharmacare program. It proposes the implementation of an essential medicines list by 2022 and a comprehensive national formulary by 2027.
Moderator:
Durhane Wong-Rieger, President & CEO, Canadian Organization for Rare Disorders (CORD)
Panelists:
David Page, National Director of Health Policy, Canadian Hemophilia Society
Whitney Goulstone, Executive Director, Canadian Immunodeficiencies Patient Organization
Mina Mawani, President and CEO, Crohn’s and Colitis Canada
Will Canadians have access to the latest scientific advances and the best that modern medicine has to offer? With national pharmacare shaping up to be a key election issue, this fall’s federal election may chart the course of healthcare for generations of Canadians.
The Canadian Organization for Rare Disorders (CORD) is hosting a series of pre-election webinars to discuss key issues that will affect ALL CANADIAN PATIENTS, not just those living with a rare disorder. Unsurprisingly, a core concern for patients is timely access to medicines along with other healthcare innovations.
We invite you to join our pre-election webinar series throughout this summer to ensure that patients’ voices are heard, as the political parties and candidates shape their election promises and start campaigning for the October 21st federal election.
The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting: August 26, 2024 at 2:00 PM (EDT) via videoconference
CORD Annual General MeetingAugust 26, 2024 at 2:00 PM (EDT) via videoconference Dear CORD Members: The Canadian Organization for Rare Disorders gives notice of it's Annual General Meeting on August 26, 2024 at 2pm - 3pm (Eastern Time). All individual, affiliate and corporate members in good standing are invited participate. An eligible voter must be a representative of a voting member of CORD. Eligible voters may either vote at the upcoming Annual General Meeting videoconference or by proxy. Votes by proxy must be in must be returned to us by August 25, 2024. Ballots received after this date and time, duplicate votes and spoiled ballots will not be counted. To participate in the AGM teleconference, please register by August 25, 2024 Registration: https://bit.ly/4aM8IJL Once we have received your response, we will email you the teleconference details and any other necessary documents that will be required for the meeting. Thank you for your participation and if you have any questions, please let me know. Sincerely, Christine White CORD Secretary PROXY-2024Download
The Canadian Organization for Rare Disorders Hereby Gives Notice of its Annual General Meeting: August 26, 2024 at 2:00 PM (EDT) via videoconference
CORD Annual General MeetingAugust 26, 2024 at 2:00 PM (EDT) via videoconference Dear CORD Members: The Canadian Organization for Rare Disorders gives notice of it's Annual General Meeting on August 26, 2024 at 2pm - 3pm (Eastern Time). All individual, affiliate and corporate members in good standing are invited participate. An eligible voter must be a representative of a voting member of CORD. Eligible voters may either vote at the upcoming Annual General Meeting videoconference or by proxy. Votes by proxy must be in must be returned to us by August 25, 2024. Ballots received after this date and time, duplicate votes and spoiled ballots will not be counted. To participate in the AGM teleconference, please register by August 25, 2024 Registration: https://bit.ly/4aM8IJL Once we have received your response, we will email you the teleconference details and any other necessary documents that will be required for the meeting. Thank you for your participation and if you have any questions, please let me know. Sincerely, Christine White CORD Secretary PROXY-2024Download
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