CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.Learn More
Register Now: Up Close and Personal with pCPA on 22nd June! Survey requesting your input on how to make the process more transparent and equitable.
Join us for a dialogue with pCPA (panCanadian Pharmaceutical Alliance) Many thanks to all who completed our online survey. Now is your chance to interact with pCPA directly, in person, by Webinar/teleconference. Hosted by Canadian Organization for Rare Disorders and Consumer Advocare Network Featuring: Imran Ali (Senior Manager) Anchalee Srisombun (Senior Negotiator) Sang Mi Lee (Senior Pharmacist) Dan Sing (Senior Economist) Nessa Podkoscielny (Negotiations Consultant) Date & Time: 22 June 2016, 9:30 am - 11:30 am Location: downtown Toronto (details to be sent upon registration), or by webinar/teleconference Please complete the registration form indicating how you will participate. Registration Link: https://www.surveymonkey.com/r/REGISTERPCPA The panCanadian Pharmaceutical Alliance are requesting your input on how to make the process more transparent and equitable. SURVEY DEADLINE: June 20 Link to survey: https://www.surveymonkey.com/r/pCPA_Process_Consult
Today, on International Rare Disease Day, (CORD) welcomes the announcement made by Ontario Health Minister Eric Hoskins to open a new clinic for patients with Ehlers-Danlos Syndrome (EDS), which could be expanded to other rare disorders, as well as his commitment to strike a working group to develop an Ontario approach to a coordinated provincial healthcare system for patients with rare disorders.
Living with Rare Disease. April 28 in Toronto. Innomar Strategies will be holding an interactive seminar to assist clients to better understand the evolving landscape of rare disease, including the impact on patients, payers, manufacturers and health care professionals.
Thursday, April 28, 2016 Toronto Congress Centre | 650 Dixon Road | Toronto, ON Innomar Strategies will be holding an interactive seminar to assist clients to better understand the evolving landscape of rare disease, including the impact on patients, payers, manufacturers and health care professionals. Hear from a diverse panel of stakeholders on this emerging topic. Learn how to raise awareness and navigate this changing marketplace. How do we create equal access for patients with rare disease? How do we demonstrate the societal benefits of therapy while addressing payer sustainability concerns and cost-containment strategies? Morning Plenary: Updates to Canada’s Rare Disease Strategy – Where are we now? Detection, management and sustainability of treatment Development of real world evidence in rare disease Policy and reimbursement for rare disease – Is there a pathway for collaboration? Hear from a variety of perspectives – physicians, patient advocates and payers Afternoon Session*: One-on-one consultation with the stakeholders from the morning plenary to ask your strategic questions (limited sessions available). You should attend if you work in… Market Access Marketing / Market Research Drug Plan Management – Public/Private Payers New Product Launches Patient Support Programs Reserve your spot today! Contact Julia Scott-Wells for more information. Julia Scott-Wells905.681.6551 firstname.lastname@example.org DEADLINE FOR REGISTRATION IS MARCH 28, 2016. * Please note: Afternoon Session availability will be secured upon registration and payment. You may use a credit card or choose to be invoiced by Innomar Strategies.