CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. » More info
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The Rare Diseases Clinical Research Network (RDCRN) and the Clinical and Translational Science Awards (CTSA) are sponsoring the 2nd Conference on Clinical Research for Rare Diseases (CCRRD) on Tuesday September 21, 2010 in Bethesda, Maryland. |
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How Drugs Are Approved and Funded in Canada: What Every Patient Should Know These educational seminars are specifically designed for patients and laypersons who want to better understand the processes related to drug research, development, approval, and availability through provincial drug plans. Date: Sep 17 - 18, 2010 |
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Join us for CORD's 3rd Annual Action Day on Parliament Hill Date: Sep 30, 2010 |
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Many Rare Disorders—One Common Voice
Annual Conference on Rare Disorders This year’s conference will include more workshop sessions for “hands-on” learning. Please complete the pre-conference survey to indicate your preferences for topics and content. Registration for the conference will be available shortly. |
Current Issues
New system urged to treat rare-disease patients: analysis
Canada is one of the few developed countries that doesn't have a formal policy allowing access to ‘orphan drugs'
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World Orphan Drug Congress: Europe 2010
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CORD receives "warm" response to call for National Plan for Rare DIseases from MPs on House Health Committee, June 3, 2010
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Global genes project To raise awareness for millions of children living with rare disease
Campaign Brings Together Support from over 90 Corporations, Non-Profit Foundations, Research Institutions, Hospitals and Advocacy Groups; New Blue Jeans Denim Ribbon Unveiled To Promote Rare Disease Awareness.
February 1, 2010 - Hope - It's In Our Genes.!" The Children's Rare Disease Network today announced the Global Genes Project, an initiative designed to raise awareness about the prevalence of rare diseases that afflict millions of children worldwide. » Read more
To become a part of the Global Genes Project, please contact CORD for more information.
Canada's "Chance for Life" Strategy
Canadians with rare disorders need timely access to innovative therapies. Many of these represent the only effective therapy for severe, life-threatening disorders. » More info
Position Paper on Canada's Orphan Drug Policy
Canadians suffering from rare debilitating or life threatening diseases need an Orphan Drug Policy that will assure Canadians with rare diseases have timely affordable access to the best therapies and provide competitive incentives for Canadian-based companies. » More info
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