CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. » More info

Current Events

Annual General Meeting: Sept 22, 2015
2015 AGM Notice
2015 AGM Proxy

Urgent Need for Patient-Centred Lab Reform in Ontarin We are asking patient groups to lend their support to these principles by signing the declaration in support of Lab Reform.

Supporting the PARTNERS Network
The Canadian Organization for Rare Disorders is pleased to “partner” with the PARTNERS initiative described in this attachment. An introduction to PARTNERS explained in these short slides.

Canada's Rare Disease Strategy
CORD is excited to announce Canada’s first-ever Rare Disease Strategy with five key goals to improve care and treatment of rare disorders: improving early detection and prevention, providing better care, enhancing community support, providing access to promising therapies and promoting innovative research.

FAQs: Everything you Want to Know about Canada's Rare Disease Strategy

Executive Summary (English)
Executive Summary (French)

Canada's Rare Disease Strategy (English)
(French version of the full strategy document will be available soon)

Download Canada's Rare Disease Strategy and take action by signing our online petition here.

CORD Assuring Affordability and Sustainable of Access to Drugs for Rare Diseases: Key Points, June 25/15

Video from the
Press Release on Canada's Rare Disease Strategy

The Globe and Mail article: Group releases strategy to help Canadians with rare diseases get care

Photo Album from Canada's Rare Disease Strategy Launch.

CORD gives feedback on CADTH-PCODR Open Meetings and Transparency
» Click here to view full feedback

Rare Disease Day 2015
Conference: Strategy, Research Updates, Training
March 5 - 7, 2015 Toronto ON
» Click here for agenda
» Click here for presentation slides


Rarity Awards Dinner Gala with Honourary Gala Chair and Keynote Speaker, The Honourable James Moore, Minister of Industry March 5, 2015 Toronto ON
» Click here to view photos from the Gala

Wyatt Health Management is proud to present CDR Tracker ® for Patients CDR Tracker for Patients, allows you to search an online database to see if and how your drug is covered by public drug plans. Click here to access CDR Tracker for Patients

» Click here for Summary of the Summit for Access to Drugs for Rare Diseases in Canada

CORD Urges Ministers of Health to Adopt Proven Model for Improved Access to Treatments for Rare Disorders
Click here for full press release

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