CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. » More info
News & Events
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Major Progress on Rare Disorders in Canada |
Join us to hear from Health Canada about upcoming rare diseases framework that could be in place as early as next year. Your input is needed. |
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Hypophosphatasia Impact Patient Survey Enobia Pharma has recently launched an online patient impact survey, designed for patients living with Hypophosphatasia (HPP). » More info |
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Patient Fellowships Available DIA Europe 2010 The Drug Information Association (DIA) organizes the EuroMeeting each year bringing together all interested parties involved in drug development and regulatory affairs. » More info |
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Canadian Researchers Invited To Apply for Genetic Disease Research Grant The Canadian Gene Cure Foundation (CGCF) is pleased to announce a new request for applications for grants available that support novel treatment and therapeutic approaches for genetic diseases. |
Current Issues
Canada's "Chance for Life" Strategy
Canadians with rare disorders need timely access to innovative therapies. Many of these represent the only effective therapy for severe, life-threatening disorders. » More info
Position Paper on Canada's Orphan Drug Policy
Canadians suffering from rare debilitating or life threatening diseases need an Orphan Drug Policy that will assure Canadians with rare diseases have timely affordable access to the best therapies and provide competitive incentives for Canadian-based companies. » More info
Private Members Motion (M-426)
On May 17, the House of Commons passed a Private Members Motion (M-426) on Rare Diseases. MP Don Bell from North Vancouver worked with members of all parties to gain support for this initiative. » More info