CORD is Canada's national network for organizations representing all those with rare disorders.

CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.

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Event

Rare Disease Day 2017 Conference Registration: March 30 - 31 , 2017

March 30, 2017
Sheraton Vancouver Wall Centre, 1088 Burrard Street, Vancouver, BC
Date: March 30 - 31, 2017 Location: Sheraton Vancouver Wall Centre, 1088 Burrard Street, Vancouver, BC REGISTER HERE Living Rare: With Research, Possibilities are Limitless With Patients, Anything Imaginable is Achievable! 2-Day Conference: March 30-31, 2017 OBJECTIVES Share experiences of living ... enhanced by a rare condition Connect with groups that improve rare living Create inspired and inspiring solutions within Canada’s Rare Disease Strategy Rare Disease Day 2017 Attached Conference Outline Through videos, testimonials, and facilitated discussions, we will provide an opportunity to get to know the people living with the rare conditions and their patient groups or organizations. Each of the four panels will be organized around one of the four core pillars of Canada’s Rare Disease strategy: diagnosis, expert care, community support, and access to therapy. The fifth pillar, research, will be integral to addressing issues identified in each of the other areas. CORD is offering travel bursaries to patient group representatives to help offset the cost of travel to the Rare Disease Day 2017 Conference. Apply at: https://www.surveymonkey.com/r/rdd17application CORD room rate at the Sheraton $199/night if booked by Feb 28 REGISTER HERE Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.

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Join us and become part of an active Canadian rare disorder community. The only national organization representing all rare disorder patient groups in Canada.

Individual Membership

For individuals, patients or family members.

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Affiliate Group Membership

For patient-based organizations, support groups or other charitable groups.

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Corporate Leaders Membership

For industry (pharmaceutical/biotech) and corporate associations.

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