CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. » More info

Current Events

Marita Annette Adams
July 28, 1956 - July 4, 2014.

We wish to express our deepest sympathy to John Adams and his family regarding the passing of his wife, Marita.

The family requests that in lieu of flowers, donations are made to CORD. Click here to donate in Marita's memory.

A commemorative service to celebrate her life will be held on Monday, July 28, 2014 at Grace Church on the Hill, 300 Lonsdale Road, Toronto at 4:00 p.m.

Special Insert on Rare Diseases in Canada. Fighting for Access to Life-Transforming Therapies
» Click here to download the full publication.

Rare Disease Day 2014 Report
» Click here to download the full report.


Help us Petition the Minster of Health to Approve the Orphan Drug Regulatory Framework
» Click here to sign the petition.
» Click hereto find out more about the Orphan Drug Framework.

International Alliance of Patients' Organizations
CORD encourages all patient groups to join IAPO. The new IAPO membership guide can be found below » Read more

CORD Draft Response to CADTH Consultation - Drugs for Rare Diseases- We invite you to provide us with any commentary or feedback.
» Read more
» Link to CORD draft response to the CADTH Consultation on Drugs for Rare Diseases

Canadian patients have more opportunities for participating in clinical trials; especially important for rare diseases thanks to new CIHR and pharma industry initiative to set up Canadian Clinical Trials Coordinating Centre.
» Click here for more information


 

New Brunswick is funding drugs for rare diseases--finally!
» Click here to read full update

Common Drug Review rejects CORD call for separate review process.

» Click here to read full update

Wyatt Health Management
is proud to present
CDR Tracker ® for Patients
CDR Tracker for Patients, allows you to search an online database to see if and how your drug is covered by public drug plans. Click here to access CDR Tracker for Patients

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