CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.Learn More
November 19, 2015 - November 20, 2015
Hyatt Regency Toronto, 370 King St. W., Toronto, Ontario
Two-Day Expert Patient Training in Health Technology Assessment The purpose of the Canadian Expert Patients in Health Technology is to provide the knowledge, skills, and practical tools to empower patients to take an informed and effective role in assuring that there is sustained, equitable, and affordable access to most appropriate health technologies for all Canadians, and that patients are central to defining, monitoring and evaluating appropriate use for individuals and the patient population collectively. Impact Patients accessing healthcare optimal to individual needs and values: medicines and other therapies, clinical trials and research programs, timely screening and diagnosis, and support to live as well as possible. Activities * Patient training workshops * Patient tools and resources UPDATED: Expert Patient Advocates & 21st Century Therapies Forum - Draft Agenda * To receive member rates you must login at the top right hand corner of raredisorders.ca Refund Policy: Cancellations received a minimum of 15 days prior to the event will receive a refund minus an administrative fee of $15.00. This fee covers the cost of processing the registration and refund. Cancellations received after the 15-day deadline and no-shows are non-refundable.
November 19, 2015
The Burroughes, 639 Queen St. W, Toronto, Ontario
Rare Finds is coming to Toronto! If you attended (the original) Rare Finds in Vancouver, you know what a unique and rewarding event this is! Best of all, you’ll be supporting Rare Disease Research in Canada. Evening begins at 7:00pm. Meet the Chefs Cole Glendinning: Executive Sous Chef Fairmont Royal York A true advocate of sustainability and sourcing locally Chef Glendinning believes in doing the right thing for his guests, the environment and his community. His style stems from the palette that he developed working with esteemed Chef’s over the years with a large emphasis on fresh, local and good technique. Chef Glendinning’s passion for true local food is always at the forefront of his mind when planning menus and events. The 13th floor rooftop garden at the Fairmont Royal York is a space of inspiration and a teaching ground for the chefs of the Royal York. The garden includes 18 – 8 foot by 4 foot raised beds, various trellis’s and window boxes as well as our very own six honey bee hives that produce roughly 700 pounds of award winning honey every season. Andres Marquez: Chef/Co-Owner Reforma 35 Self made entrepreneur and chef, he has been working in restaurants for 17 years. After helping to create 3 Mexican brands in Toronto he had a epiphany, he would use his good fortune and hard work to promote Mexican culture. As an informal ambassador of Mexican culture he has launched an new restaurant Reforma , 35 Baldwin where standard Mexican dishes are reformed. Andres Marquez has made it a mission to work with every charity that contacts him, the reasoning is beyond simple. It takes very little effort to give back and care, and just like cooking with his family he gives a bit of his soul and love win every dish. Tallis Voakes: Executive Chef & owner of Providore Tallis hails from Merrickville Ontario, where his pursuit of all things culinary began at the age of sixteen. After attending culinary arts at Le Cordon Bleu, Tallis was offered a job at Nobu, in London, UK. While in London, Tallis received the opportunity to work with chefs Jason Atherton (Gordon Ramsay’s Maze & Pollen Street social), Anthony Demetre (Arbutus), Fergus Henderson (St. Johns) and Hamish Brown (Roka). In 2012 Tallis was brought on as Executive Chef of Paintbox Bistro and Catering. In 2014 Tallis opened Small Town Food Co., restaurant in Toronto where Tallis was able to hone his skills in Modern Canadian Cuisine. Tallis’ newest project is Providore Catering, a full scale catering company serving the Greater Toronto Area. He leads the Providore kitchen team as executive chef and partner. Come for the Treats; Stay to Make a contribution Sponsored by the Canadian Organization for Rare Disorders in partnership with the Rare Disease Foundation. Experience top chefs at a unique culinary cocktail event with all the proceeds to fund rare disease research in Canada. Challenge your senses with unusual ingredients, Indulge in interesting wines and “not-your-usual” alcoholic and nonalcoholic concoctions, Auction of Rare Finds with Unique Twists, including: Unusual things to do, Little-known places to go, Rare objects to own, Rare pleasures to share, Rare Moments with Rare FriendsCome for the Treats. Rare Finds Supports A Unique Research Grants Approach As a friend of the rare disease community, you already know the extraordinary challenges faced by families with rare and undiagnosed diseases. There are more than 7,000 rare conditions affecting nearly 3 million Canadians, half of whom are children. That’s why CORD is partnering with the Rare Disease Foundation (RDF) to deliver the Rare Disease Microgrant Program. Pioneered by RDF, the program’s unique approach leverages relatively small amounts of money and good ideas to create large impacts for those living with rare disorders. The RDF Microgrant Program brings together: researchers with skills and interest in genetics and other applied fields, patients and families with first-hand knowledge of rare and ultra-rare conditions, and clinicians dedicated to “heroic efforts” when it comes to improving the lives of their patients. Dress: Cocktail/ Smart Business Ticket Price: $95 Time: 7:00pm