Thank you to all of our speakers, sponsors and attendees for making CORD Rare Disease 2022 Fall Conference such a success!
Day 1 Video Recording
Day 2 Video Recording
Agenda
Day 1 Slides
- State of the Art: Updated Patient/Family Experience of Living with Rare Disease in Canada: Nahya Awada, CORD; Grace Tong, Ipsos
- Strengthening Health Canada’s Commitment: Michelle Mujoomdar/ Daniel MacDonald, Health Canada
- Rare Disease Community of Excellence: Leanne Ward, CHEO
- Public-Private Partnerships – Beyond the Pill: Sandra Anderson, Innomar Strategies
- Patient Information: Registries and Beyond, Ma’n H. Zawati, McGill University & Katheron Intson, University of Toronto Slides
- Genetic Diagnostic Programs. Newborn Screening: Andreas Schulze, The Hospital for Sick Children
- Clinical Networks of Excellence:Leanne Ward, CHEO; Craig Campbell, London Health Sciences; Francois Bernier, Alberta Health Services
- Genomic Screening and Sequencing : Greg Costain, Christian Marshall, The Hospital for Sick Children , Alison Elliott, GenCOUNSEL & Leon Atkins, Screen4CareInitiative
Day 2 Slides
- Improving Coordination, Collaboration, and Consistency to assure timely and appropriate reviews for rare and ultra-rare therapies – Celia Lourenco, Health Canada
- The NICE Experience and Alternative Financing Models, Bill Dempster, 3Sixty Public Affairs
- Bespoke Gene Therapy – Terry Pirovolakis, CureSPG50
- From Genomics to New Therapies for Rare Diseases – Vincent Mooser, McGill University
- PharmacoGenomics: A Model for Managed Access to Rare DiseaseTherapies – Bruce Carleton, University of British Columbia
- Patient Engagement: David Page, Canadian Hemophilia Society & Durhane Wong-Rieger, CORD Slides