News
CORD's pre-budget submission
Aug 8, 2024 / News
CORD’s pre-budget submission calls on the federal govt to finalize funding for the National Strategy for Drugs for Rare Diseases.
Read MoreCORD is pleased that the governments of Canada and British Columbia have signed this bilateral agreement
Jul 23, 2024 / News
We would like to thank all of our members and partners that have advocated over the past fifteen years for a Canadian rare disease strategy.
Read MoreCORD’s Submission to the House of Commons Standing Committee of Health
May 23, 2024 / News
CORD’s Submission to the House of Commons Standing Committee of Health regarding their study on Bill C-64, An Act Respecting Pharmacare. Rare Disease in Bill C-64: Similarities, Deviations, and Learnings.
Read MoreCall for Nominations for CORD Board of Directors 2024-2027
May 15, 2024 / News
The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2024-2027 term to help guide our organization to meet the needs of the rare disease community.
Read MoreNew patient registries will improve health care and outcomes for children and families living with rare diseases
May 10, 2024 / News
Until now, no patient registries have existed in Canada for mucopolysaccharide (MPS) and phenylketonuria (PKU) – both rare, inherited metabolic diseases which result in developmental disabilities and other neurological problems.
Read MorePetition calls for rare disease strategy in Ontario
May 3, 2024 / News
Petition calls for rare disease strategy in Ontario.
Read MoreBayshore Donation
Mar 18, 2024 / Press Release
The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD).
Read MoreRare Disease Day 2024 Summit in Ottawa
Mar 4, 2024 / News
View our videos and slides from our conference.
Read MoreJoin us Feb. 29th for our march on Parliament Hill!
Feb 26, 2024 / News
On the occasion of Rare Disease Day on Thursday, February 29th, and as part of our #FightForOurLivesadvocacy (which calls on decision-makers to released promised funding for rare disease treatments), we are organizing a march on Parliament Hill.
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#FightForOurLives
Feb 9, 2024 / News
Last year, the federal government launched the National Rare Disease Drug Strategy, which included a funding commitment of $1.4 billion to help provinces and territories pay for rare disease drugs.
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Rare Disease Day 2024 Canadian Illuminations
Jan 30, 2024 / News
On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare
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