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CORD's pre-budget submission

CORD’s pre-budget submission calls on the federal govt to finalize funding for the National Strategy for Drugs for Rare Diseases.

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CORD is pleased that the governments of Canada and British Columbia have signed this bilateral agreement

We would like to thank all of our members and partners that have advocated over the past fifteen years for a Canadian rare disease strategy.

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CORD’s Submission to the House of Commons Standing Committee of Health

CORD’s Submission to the House of Commons Standing Committee of Health regarding their study on Bill C-64, An Act Respecting Pharmacare. Rare Disease in Bill C-64: Similarities, Deviations, and Learnings.

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Call for Nominations for CORD Board of Directors 2024-2027

The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2024-2027 term to help guide our organization to meet the needs of the rare disease community.

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New patient registries will improve health care and outcomes for children and families living with rare diseases

Until now, no patient registries have existed in Canada for mucopolysaccharide (MPS) and phenylketonuria (PKU) – both rare, inherited metabolic diseases which result in developmental disabilities and other neurological problems.

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Petition calls for rare disease strategy in Ontario

Petition calls for rare disease strategy in Ontario.

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Bayshore Donation

The Bayshore Foundation for Empowered Living, the charitable arm of Bayshore HealthCare, has donated $5,000 to the Canadian Organization for Rare Disorders (CORD).

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Rare Disease Day 2024 Summit in Ottawa

View our videos and slides from our conference.

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Join us Feb. 29th for our march on Parliament Hill!

On the occasion of Rare Disease Day on Thursday, February 29th, and as part of our #FightForOurLivesadvocacy (which calls on decision-makers to released promised funding for rare disease treatments), we are organizing a march on Parliament Hill.

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#FightForOurLives

Last year, the federal government launched the National Rare Disease Drug Strategy, which included a funding commitment of $1.4 billion to help provinces and territories pay for rare disease drugs.

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Rare Disease Day 2024 Canadian Illuminations

On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare

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CORD submission to PMPRB Scoping Paper consultation on new Guidelines

This week CORD submitted its feedback to the PMPRB’s new Scoping Paper on upcoming guidelines. We are encouraged that the PMPRB appears to be returning to its core mandate and is undertaking more meaningful engagement with patients and other stakeholders.

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