CORD is pleased that the governments of Canada and British Columbia have signed this bilateral agreement
Jul 23, 2024 / News
We would like to thank all of our members and partners that have advocated over the past fifteen years for a Canadian rare disease strategy.
Read More
CORD’s Submission to the House of Commons Standing Committee of Health
May 23, 2024 / News
CORD’s Submission to the House of Commons Standing Committee of Health regarding their study on Bill C-64, An Act Respecting Pharmacare. Rare Disease in Bill C-64: Similarities, Deviations, and Learnings.
Read More
Call for Nominations for CORD Board of Directors 2024-2027
May 15, 2024 / News
The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2024-2027 term to help guide our organization to meet the needs of the rare disease community.
Read More
New patient registries will improve health care and outcomes for children and families living with rare diseases
May 10, 2024 / News
Until now, no patient registries have existed in Canada for mucopolysaccharide (MPS) and phenylketonuria (PKU) – both rare, inherited metabolic diseases which result in developmental disabilities and other neurological problems.
Read More
Petition calls for rare disease strategy in Ontario
May 3, 2024 / News
Petition calls for rare disease strategy in Ontario.
Read More
