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Letter to Federal Political Leaders: Canada’s Rare Disease Strategy is needed NOW more than ever

Jan 14, 2025 / News

Canada is the ONLY developed country without a national strategy for #RareDiseases, which affect over 3 million Canadians. It’s time for federal leaders to take action and create a strategy that ensures improved care, access to treatments, and better outcomes for rare disease patients and their families.

Read our full letter here