Thank you to all of our speakers, sponsors and attendees for making CORD Rare Disease Day Conference such a success!
Video Recordings
Day 1 AM: https://youtu.be/LcCGnaaoQr4
Day 1 PM: https://youtu.be/lE0UejriiJw
Day 2 AM: https://youtu.be/FxN0cN8MTUA
Day 2 PM: https://youtu.be/o8uBzO5KOF8
Agenda
Day 1 Slides
- Challenges to Address Rare Patient Experience in Canada Feedback from patients and families to CORD survey on navigating the healthcare system (full report) – Hyejin Park, Ipsos
- Building Specialized Network to Optimize Care for Canadians Living with Childhood-Onset Rare Bones Disease – Leanne Ward, CHEO
- Value-based Healthcare and Real-World Evidence: TOWWERS Showcase Bridging Centres of Expertise and Managed Access to Therapies – Julie Frappier, Data 4 Actions
- Managed Access Schemes—Canadian Experience – Tara Cowling, Medlior
Day 2 Slides
- Disruptive Technology Solutions for Cell & Gene Therapy Challenge Program – Risini Weeratna, National Research Canada
- Delivering on Canada’s Rare Disease Research Investment – Thierry Lacaze, MICYRN
- Supporting Clinical Trials in Rare Disease – Susan Marlin, Clinical Trials Ontario
- Unique pilot project to bridge gap for adult patients with inherited retinal disease – Brian Ballios, Toronto Western Hospital
- AI and Rare Disorder Research – François Bolduc, University of Alberta
- Pan-Canadian Rare Disease Integrated Data Infrastructure -Brad Milson, IQVIA
- The Economics of Drugs for Rare Disease – Lindy Forte, Eversana
- Genomic Sequencing: AllforOne Health Data Ecosystem -Magda Price, CHEO
