CORD's pre-budget submission
Aug 8, 2024 / News
CORD’s pre-budget submission calls on the federal govt to finalize funding for the National Strategy for Drugs for Rare Diseases.
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CORD is pleased that the governments of Canada and British Columbia have signed this bilateral agreement
Jul 23, 2024 / News
We would like to thank all of our members and partners that have advocated over the past fifteen years for a Canadian rare disease strategy.
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CORD’s Submission to the House of Commons Standing Committee of Health
May 23, 2024 / News
CORD’s Submission to the House of Commons Standing Committee of Health regarding their study on Bill C-64, An Act Respecting Pharmacare. Rare Disease in Bill C-64: Similarities, Deviations, and Learnings.
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Call for Nominations for CORD Board of Directors 2024-2027
May 15, 2024 / News
The Canadian Organization for Rare Disorders is looking for passionate, creative, committed, qualified people to join our Board of Directors for the 2024-2027 term to help guide our organization to meet the needs of the rare disease community.
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New patient registries will improve health care and outcomes for children and families living with rare diseases
May 10, 2024 / News
Until now, no patient registries have existed in Canada for mucopolysaccharide (MPS) and phenylketonuria (PKU) – both rare, inherited metabolic diseases which result in developmental disabilities and other neurological problems.
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