Nov 29, 2023 - Delta Calgary Downtown Agenda Day 1 Slides: Gail Ouellette, RQMO Stephen Parrott, Canadian VHL Alliance Karen Kelm, Fragile-X Canada Maureen Smith, INFORM RARE Jida El-Hajjar, ALS Action Canada Peter Cleary, Santis Health Jennifer Grandy, Health Canada Homira Osman, Muscular Dystrophy Canada Bruce Carleton, University of British Columbia Jan-Willem Henning, University of Calgary Gillian Currie/Deborah Marshall, University of Calgary Jim Dowling, Hospital for Sick Children, Toronto Kim McBride, Alberta Children’s Hospital Nowell Fine, University of Calgary Nicola Wright, Alberta Children’s Hospital Susanne Benseler, François Bernier & team Day 2 Slides: Kate Harback, Institute of Health Economics Michèle de Guise, INESSS Durhane Wong-Rieger, CORD Trish Caetano, CADTH Sophie Sommerer, Health Canada Tara Cowling, Medlior Sang-Mi Lee, Morse Consulting Lindy Forte, EVERSANA Bob McLay, Sobi Jason Brown, Novartis